What is Hydrocephalus?


Hydrocephalus (hi'dro-sef'a-lus), also known as "water on the brain", is an abnormal accumulation of cerebrospinal fluid (CSF) within the cavities of the brain (called ventricles). A lack of absorption, blockage of flow, or overproduction of the cerebral spinal fluid can cause this. An accumulation of CSF places pressure on the brain by, in many cases, by pushing the brain against the skull. Currently the most common treatment for Hydrocephalus is brain surgery to insert a mechanical drain (a Shunt) into the ventricles and drain the CSF away from the brain.


Unfortunately, there is no known cure for Hydrocephalus. This is why we need to up our awareness game, big time!



 

What is Carli's Angels?

Carli's Angels is a community of like minded people dedicated to helping our Hydrocephalus families. We all want to make a positive difference in the lives of Hydrocephalus patients and families around the globe. Constantly striving to improve awareness, drive more effective treatments and ultimately "A Cure".


We support the Hydrocephalus community by providing a loud, positive and active voice for Awareness and Funding a Cure"
- Carli C. - Creator of Carli's Angels and Hydrocephalus patient

Our Mission is to mobilize a positive, active, friendly community to:



  • Drive Hydrocephalus Awareness

  • Provide information and education about Hydrocephalus

  • Provide an active, positive voice, for Hydrocephalus patients and families

  • Raise Funds for Research and awareness campaigns




Carli's Angels and Rand Realty of Yorktown
2nd Annual Coed Summer Classic Softball Fundraiser!

August 13th, 2017
5:00PM
Softball Fields on 202 in Yorktown Heights, NY





Carli's Angels is proud to be partnering with Rand Realty of Yorktown to help raise awareness and funds for Hydrocephalus Patients, Families and Research. We are excited and grateful to have been chosen as the Charity of choice for Rand Realty of Yorktown. As part of our fundraising efforts, we will be hosting the 1st Annual Better Homes and Gardens Rand Yorktown Coed Summer Classic with all proceeds going to benefit the Pediatric Hydrocephalus Foundation care of Carli's Angels!


Come out, watch the game and join the fun. This is sure to be a fun event for the entire family!


You can be a part of our fundraising efforts by clicking the Donate button below!


Donate

Thank you to our sponsors!




Pediatric Hydrocephalus Foundation’s 7th Annual Day on Capitol Hill for Hydrocephalus Awareness.

Friday August 18, 2017
First St SE, Washington, DC 20004

For the past several years, Carli’s Angels has joined the PHF in Washington, D.C. to help drive awareness and the need for funding. We are very proud to be part of such an important event and we are looking forward to participating again this year. We will be spending two days in D.C. with the PHF and their members from all over the US! We will be spending our time educating Congressional staff members on Hydrocephalus and the need for Congress to be more involved


8th Annual PHF Hydrocephalus Awareness 5K & Family Fun Day

Date: TBD
Time: TBD
Location: TBD

Carli’s Angels is very proud to be part of the 8th Annual PHF Hydrocephalus Awareness 5K and Family Fun Day! This event will be another fun day to benefit the PHF's efforts to "Fund a Cure for Hydrocephalus".

We expect to have:
5K Race
Raffles
Food
Bounce House
Face Painting
Activities for kids of all ages


Please e-mail us, using the link below, if you would like to participate in the event. We are actively seeking VOLUNTEERS, EXHIBITORS, ENTERTAINMENT and SPONSORS. Our event is a great opportunity for local businesses to sponsor and engage with the community.

This is going to be an exciting event and we would love to have you join us!



E-Mail us for more information:
E-Mail Us


Chadwick Lake Park
311 Route 32
Newburgh, NY 12550
(map to location)

September is National Hydrocephalus Awareness Month!


Congressman Leonard Lance from NJ issued the following statement in support of September as National Hydrocephalus Awareness Month.

Today we recognize September as National Hydrocephalus Awareness Month.
For far too long, little attention has been paid to hydrocephalus."

This condition can occur at any age and affects an estimated one million Americans. In fact, one out of every 500 babies in the United States is born with hydrocephalus, making the condition the leading cause of brain surgery in children. Additionally, an increasing number of our veterans are developing post-traumatic hydrocephalus as a result of brain injuries suffered on the battlefield. Currently, there is no single known cause of hydrocephalus or ways to prevent or cure the condition.

As part of our Awareness efforts, I was invited in September 2014 to give a speech to members of Congress. This was a wonderful opportunity and I took full advantage of it! I was one of 4 speakers and the only teen invited to tell my story. I was able to educate members of congress about Hydrocpehalus and share my story. If you are interested in reading my speech, you can download it by clicking here or just drop me an e-mail and I will be happy to share it with you. My speech was also published in the "On My Mind 2015" book published by the Northeast Westchester Rotary Foundation (www.newrotaryclub.org).



On a personal note, Why Hydrocephalus Awareness
is important to me...


Hydrocephalus Awareness is very important to me because I know what it's like to live with this medical condition. What it's like to spend your birthday and other holidays in a hospital bed pleading the neurosurgeons to hold off on surgery for one day so you can enjoy that special day. Even when you miss parties and other events because of horrible headaches that come with having hydrocephalus. Or having people look at you weird when you come back to school for the first time after brain surgery and part of your head is shaved and people think you are "different" or "odd." My goal is to help people, their families and their friends facing these challenges and let them know that they are NOT alone!


To date, with your help, we have raised over $25,000 for the Hydrocpehalus Community! I could not be more proud of our community for all their efforts and support!

I am excited to share with you that I have recently committed to attend Sacred Heart University as part of the Class of 2020! Because of all our efforts, I was awarded a generous Community Service Scholarship to help support my university studies! I can't even tell you have excited I am and how much I am looking forward to introducing Sacred Heart to Carli's Angels!!!

With your continued help and support, I know we can make a positive difference in the lives of Hydrocephalus patients and their families. Thank you for all your love and support,
Carli
Click here to email me

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you up to date about Carli and hydrocephalus related news and events.

Contact

We would love to hear from you. It's only through community and communication we will reach our goals!

Get in touch

Here is a map to 2016 Fun Day at
Chadwick Lake Park
311 Route 32
Newburgh, NY 12550
We will see you there!

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